We take privacy seriously and all information held by the Register is maintained securely. Register staff abide by the WA Health Code of Conduct which highlights confidentiality as an important part of Responsible Care.
Reports released from the Register are in statistical form, without identification of individuals, doctors or hospitals. It is unusual for named data to be provided, and those who request this information must go through several rigorous steps before gaining access. Families who do not want to be contacted for research purposes can tell the Register this.