On average, 30-40 requests for information or data are received by WARDA each year. These requests come from State or Federal Departments of Health, health professionals and institutions in WA, Australia or overseas as well as the general public, the media and students.
Community organisations such as support groups also contact the Register for information.
Reports released from the Register are in statistical form, without identification of individuals, doctors or hospitals. It is unusual for named data to be provided, and those who request this information must go through several rigorous steps before gaining access. Families who do not want to be contacted for research purposes can tell the Register this.